Partnerships
Let's do great things together.
zebraMD is a consented, physician-run patient data platform built around meaningful patient participation, not simply a source of data. Every collaboration starts with patient benefit, with opportunities spanning research, real-world insights, clinical care, and beyond. Rare disease is our starting point; the scalable infrastructure is disease-agnostic.
Who we work with
Pharma, academia, CROs, and more
Projects range from a single analytics report to a hosted clinical decision support module running in production at multiple health systems. We provide our platform and expertise at no cost for qualifying academic research collaborations.
Pharma and biotech
Cohort feasibility, trial-ready patient identification, target and secondary-indication discovery, and real-world evidence across the product lifecycle.
Academia
We collaborate with academic groups to develop and evaluate predictive models using real-world data, with opportunities to publish and share findings openly.
CROs
Fully characterized cohorts, eligibility screening, and longitudinal follow-up to make studies faster to design and easier to fill.
Disease foundations and patient groups
Partnering to strengthen patient registries and natural history studies, identify undiagnosed individuals, and help patients connect with appropriate diagnosis and follow-up care.
Health systems
Hosted clinical decision support running inside the EHR, from a single analytics report to a deployed module in production.
And more
Payers, diagnostics companies, public-health agencies. Something not on this list? Just ask.
What we offer
Our services
De-identified and aggregated by default. Patient-level data is never shared without project-specific consent.
Cohorts and feasibility
Counts, prevalence, and fully characterized cohorts for a disease area or eligibility profile.
Custom predictive models
We develop new models and evaluate existing ones on real-world data. Free for academic use, always.
Discovery
Drug discovery, therapeutic target discovery, and secondary indications for existing drugs.
Trial-ready patients
Eligible, undiagnosed, or diagnosed-but-untreated patients flagged and referred.
Dashboards you can just ask
De-identified KPI dashboards with a built-in AI assistant. Ask in plain language, get an answer without waiting on an analyst.
Evidence and publications
Real-world evidence reports, case and cohort studies, post-market surveillance, and data for secondary indication and safety studies.
The data
The 360° patient view
One patient, every angle: clinical, molecular, behavioral, and environmental. Living, dynamic, consented, multimodal real-world data built for actionable clinical interventions. Each domain is individually consented, while environmental linkage adds a longitudinal view of exposure, allowing us to understand not just where someone lives today, but where they have lived, worked, and gone to school over time.
- Clinical and EHREvery institution a patient has been seen at, patient-mediated: notes, labs, imaging, medications, encounters.
- Genomic and transcriptomicLong-read whole genome sequencing, reflex RNA-seq, clinical-grade reporting via Ambry Genetics.
- Deep phenotypeHPO-coded findings extracted by physicians to drive variant prioritization, not ICD codes standing in for a phenotype.
- Home and wearableApple Watch and other wearables, Strava activity, caretaker-reported observations, video and audio.
- Consumer and behavioralConsented purchase history, over-the-counter and supplement use, diet and spending signals.
- Geospatial and environmentalCurrent and prior addresses, schools attended, linked public-health and exposure datasets.
Our principle
The patient is a partner, not a data point
- Project-specific consent. Nothing is shared at the patient level without consent for that project, developed in close collaboration with disease foundations and patient groups.
- Clinical benefit first. Genomic testing at no cost, a real diagnosis where one exists, and referral for follow-up care through TeleRare, our clinical arm.
- Financial benefit. Revenue sharing. When a patient's data creates value, the patient shares in that value by design.
Get involved
Start with a scoping call
The best place to start is a short conversation about the disease area, research question, or clinical challenge you're working on. Tell us what you're trying to solve, and we'll explore how zebraMD can help. Contact us or email info@zebraMD.org.
zebraMD is a Public Benefit Corporation, committed to building technology that advances both patient outcomes and the public good.