Collaborations
Let's do great things together.
zebraMD is a consented, physician-run patient data platform, not a data vendor. Patients participate on purpose, and every project starts with their benefit. Rare disease is our first focus; the infrastructure is disease-agnostic.
Who we work with
Pharma, academia, CROs, and more
Projects range from a single analytics report to a hosted clinical decision support module running in production at multiple health systems. Academic collaborations are always free.
Pharma and biotech
Cohort feasibility, trial-ready patient identification, target and secondary-indication discovery, and real-world evidence across the product lifecycle.
Academia
Always free. We develop and evaluate predictive models on real-world data with academic groups and share the results openly.
CROs
Fully characterized cohorts, eligibility screening, and longitudinal follow-up to make studies faster to design and easier to fill.
Disease foundations and patient groups
Close collaboration on registries, natural history, and getting undiagnosed members to a real diagnosis and follow-up care.
Health systems
Hosted clinical decision support running inside the EHR, from a single analytics report to a deployed module in production.
And more
Payers, diagnostics companies, public-health agencies. Something not on this list? Just ask.
What we offer
Our services
De-identified and aggregated by default. Patient-level data is never shared without project-specific consent.
Cohorts and feasibility
Counts, prevalence, and fully characterized cohorts for a disease area or eligibility profile.
Custom predictive models
We develop new models and evaluate existing ones on real-world data. Free for academic use, always.
Discovery
Drug discovery, therapeutic target discovery, and secondary indications for existing drugs.
Trial-ready patients
Eligible, undiagnosed, or diagnosed-but-untreated patients flagged and referred.
Dashboards you can just ask
De-identified KPI dashboards with a built-in AI assistant. Ask in plain language, get an answer without waiting on an analyst.
Evidence and publications
Real-world evidence reports, case and cohort studies, post-market surveillance, and data for secondary indication and safety studies.
The data
The 360° patient view
One patient, every angle: clinical, molecular, behavioral, and environmental. Living, dynamic, consented, multimodal real-world data built for actionable clinical interventions. Each domain is individually consented, and environmental linkage lets us ask exposure questions retrospectively, where someone lived and went to school, not just where they live now.
- Clinical and EHREvery institution a patient has been seen at, patient-mediated: notes, labs, imaging, medications, encounters.
- Genomic and transcriptomicLong-read whole genome sequencing, reflex RNA-seq, clinical-grade reporting via Ambry Genetics.
- Deep phenotypeHPO-coded findings extracted by physicians to drive variant prioritization, not ICD codes standing in for a phenotype.
- Home and wearableApple Watch and other wearables, Strava activity, caretaker-reported observations, video and audio.
- Consumer and behavioralConsented purchase history, over-the-counter and supplement use, diet and spending signals.
- Geospatial and environmentalCurrent and prior addresses, schools attended, linked public-health and exposure datasets.
Our principle
The patient is a partner, not a data point
- Project-specific consent. Nothing is shared at the patient level without consent for that project, developed in close collaboration with disease foundations and patient groups.
- Clinical benefit first. Genomic testing at no cost, a real diagnosis where one exists, and referral for follow-up care through TeleRare, our clinical arm.
- Financial benefit. Revenue sharing. When a patient's data creates value, the patient shares in that value by design.
Get involved
Start with a scoping call
The natural first step is a short conversation about a specific disease area or question. Contact us or email info@zebraMD.org and tell us what you are working on. zebraMD is a Public Benefit Corporation.